Organizations

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Orphanet is an international reference portal for rare diseases and orphan drugs. Its mission is to improve the visibility, diagnosis, and care of rare diseases by providing reliable information for patients, healthcare professionals, and researchers worldwide. https://www.orpha.net/

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EURORDIS (Rare Diseases Europe) is a non-profit alliance of patient organizations working to promote the interests of people living with rare diseases. It aims to increase awareness, research, better policies, and improved access to care and treatments across Europe. https://www.eurordis.org/

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